https://www.thexfamily.org/home daily 1.0 2021-12-31 https://static1.squarespace.com/static/61252f736f94e0691d78b34a/t/61855beee9d84d22aa50bda5/1636562911491/Collage-1.jpg Home - Our Organization Find out about our mission, methods, and the results of our decades of advocacy. https://static1.squarespace.com/static/61252f736f94e0691d78b34a/t/618bf75429997d52f7281471/1636562849625/18057187_10212877886480721_5731512818191116821_n.jpeg Home - Take Action Ready to take the next step? You can become a contributor to our cause, or participate yourself. We love to have runners wear our Will Power shirts and raise awareness and funds on behalf of someone they know and love affected by Fragile X. Interested in hosting an event, let us know! https://www.thexfamily.org/who-we-are daily 0.75 2021-11-10 https://www.thexfamily.org/what-we-do daily 0.75 2021-11-03 https://static1.squarespace.com/static/61252f736f94e0691d78b34a/t/617c9bfe5958771fd1fc7e95/1635556356110/Screen+Shot+2021-10-26+at+12.31.28+PM.jpg What We Do https://www.thexfamily.org/our-story daily 0.75 2021-11-11 https://static1.squarespace.com/static/61252f736f94e0691d78b34a/t/617c8f236975445ee5470c92/1635557564064/IMG_0507.jpg Our Story William Perez has Fragile X Syndrome. Fragile X is the most common cause of inherited intellectual disability. William was diagnosed just before his 3rd birthday. The oldest of 3 children to Manny and Rosie Perez, William is quite the challenge. While he is generally a happy young adult, he struggles with being non-verbal. He uses an AAC (augmentative or alternative communication) device to help with his lack of expressive language. Upon obtaining a diagnosis of Fragile X, the Perez Family decided to help other families and their community learn more about Fragile X. They worked with the National Fragile X Foundation to establish the clinic here in Miami so that specialized treatment would be available locally. They also wanted to help others find therapy and resources available to them. https://static1.squarespace.com/static/61252f736f94e0691d78b34a/t/617c9ef9a9cb2d351f81a5d7/1636674142381/Screen+Shot+2021-10-29+at+9.24.13+PM.jpg Our Story - WillPower Designs Since William was very little, he has been drawing stick figures that often times show the emotions he is feeling. As we believe he is extraordinary, we chose to use his designs and artwork for the t-shirts produced by The X Family Foundation for awareness about Fragile X Syndrome. The character featured on the front of the shirt is named WillPower. Because with willpower, you can achieve anything! WillPower has become our mascot and event representative. This drawing has been featured on our t-shirts, hats, beach towels, golf towels, special event shirts, and even cooler cups. https://www.thexfamily.org/contact-us daily 0.75 2021-10-30 https://www.thexfamily.org/current-events daily 0.75 2021-11-11 https://static1.squarespace.com/static/61252f736f94e0691d78b34a/t/617cb6978339745a6e6b5a61/1635605622083/GMD2021_final.png Current Events - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.thexfamily.org/past-events daily 0.75 2021-11-11 https://static1.squarespace.com/static/61252f736f94e0691d78b34a/t/618c07eba10c8f0979ea10d8/1636567025340/DSC01983.jpg Past Events - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://static1.squarespace.com/static/61252f736f94e0691d78b34a/t/617d608246854c6579a95c60/1636567523935/10464257_978409952230385_7552453722467541517_n.jpeg Past Events - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://static1.squarespace.com/static/61252f736f94e0691d78b34a/t/618d772cd884a24a27acab15/1636661040190/Image+11-11-21+at+3.01+PM.jpg Past Events - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.thexfamily.org/events daily 0.75 2021-11-11